Thursday, July 23, 2015

Tonight ....

DB and I are watching episodes of The Generations Project tonight.  

It is like the beloved Who Do You Think You Are ...  only with non-celebrities - ya know, NORMAL people.  Celebrities are not NORMAL.   Well, frankly - neither am I....  so ....   does that make me a celebrity? 

Maybe in my own mind.  

Regardless - the first episode of the .... almost 40 episodes I have on my DVR ....  was that of Xander and Carrie ... (actually pictured above on the The Generations Project graphic.) 

Xander and Carrie are parents of twin boys who were born with a very rare deadly blood disorder called  HLH - hemophagocytic lymphohistiocytosis is usually fatal unless there is a bone marrow transplant.  Luckily for the boys, they got one, and it was an amazing match.  A 9 out of 10 match, the doctors say that 10 out of 10 is identical twins, so 9 out of 10 has to be something special.  So they were curious about two things.  1: if they were related to the donor, because they figured there had to be some sort of genetic connection there to have such a high score.  2: they were curious if any of their family members had - perhaps - lost children to HLH also.  And they did find a family in their pedigree that they are fairly confident that their three sons may have died from HLH, which wouldn't have been known at the time.  

You can actually watch the episode on the website.  HERE ..... 

It actually hit home super hard for me.  Because I have kids with rare genetic disorders.   One we may or may not have pin pointed.  The other is definitely pin pointed.  

And they live in Seattle!!  I saw them go in here ........ 

Seattle Genealogical Society ....I want to go!!!!!

DB was all shocked "You have almost 40 episodes of this????"  

I explained to him that I don't tend to watch it because it makes me desperately want to start digging in ours again an ..... AND I AM CHOMPING AT THE BIT right now ......  so I didn't really want to get into it.  I don't have an active ancestry account at the moment - so it's hard to when that's the main place that I have our trees.

Stay tuned........  I think I'll have some new entries coming up!

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